Copyright © 2017 by Jo Barlow
My tumour was a grade 1 Hemangioblastoma that could be removed surgically (even if there was a risk of bleeding to death during the operation as well as serious problems happening) but I had no option other than major surgery and yet I am relatively free of side effects after.
Yes I do have issues that I never had before, yes at times they are more than annoying, but I am here, alive and not severely disabled and for that I am eternally grateful.
I am also grateful for all the insights I had over the following days, weeks and months and can actually say I am far more content since!
Both before and shortly after surgery I decided I needed to write down my experiences, in the hope that explaining how I felt emotionally during various stages as well as the odd and worrying physical sensations, will support and help others who have been diagnosed with a brain tumour, or anyone needing brain surgery. As well as inform their friends and family how they may feel and what may help them too.
I also hope that the total change in my belief system and realisations after will help anyone who is having to go through a health crisis or supporting a patient of any kind -
I can honestly say that 2016 was both the worst and best year of my life!
In early 2016 Jo Barlow suffered with several months of feeling off balance and un coordination as well as increasing severity of headaches, and feeling ‘drunk when sober’. After a private MRI in April 2016, she was told she had a 3cm Hemangioblastoma in her cerebellum and needed urgent brain surgery. She had a posterior fossa craniotomy in May 2016 at St George's Hospital in Tooting. Jo left hospital only 48 hours after surgery, and has recovered well since.
She lives in Surburbia in South East England, is a Mum of four, the youngest of whom she home educates (the older three were all either taking GCSE’s, BTEC’s or degree’s around the time of her surgery!), loves being outside in the sun, making art and crafts as well as listening to her family play music in their various bands. She is totally into a natural health lifestyle, albeit a slight paradox with brain surgery!
Jo has been reading self-